Aimee trying on Mommy's glasses notice the upside down she likes to wear them.and these 3 people are tired! Monday, DH had doctor appt. Tuesday, Aimee had Neuro appt, which he is thinking Cerebral Palsy; not Spina Bifida. With the type of surgery they did on her spine in China, that is done for CP no SB. He's confused of want is going on in her right arm...he said he wouldn't give a for sure diagnosis until he gets all of the test results back. He ordered a MRI, they called this morning and can not get her in until August 15th, which I feel is crazy..but oh well. The doctor will be there when it is done, he may do something to her himself while she is put to sleep. That is one of the reasons it's taking so long to get an appt because they only do MRI's and putting children to sleep on Friday's...crazy I know. That afternoon she had PT, they took a closer look at her arm because of the doctor request, they're thinking none use not nerve damage, we'll see.
Yesterday she decided she was LeLe again not Aimee, which I have read that is normal for a child to do this. It broke my heart at first because it made me think she wasn't happy here. I don't know if other parents are having these emotions like I am. I just pray alot. She has done so wonderful, I guess I want her to be happy at all times and deep down in my heart I know there is know way in the world that will happen. I think of everything she has been thru in her young life and think she should be completely happy with the rest of her life...of course we love her so much we don't like to see her hurt in any way. So far today she's hasn't mentioned she is LeLe.
Plus last night she got upset over we don't know what and she cried for about 30 minutes, and she's not the type to cry for anything. Which I'm glad she's showing her emotions but yet it breaks my heart also, if that makes any sense. Of course we spent from 1:30pm to 4:30pm waiting for DH to have x-rays and mri...so she was so tired.
Please keep your prayers coming for our family and the other adoptive families!
1 comment:
Becky, you are doing a wonderful job with her. Just be patient with her name, her name has been LeLe all her life, it's what she knows,it's her identity (in her mind). She'll come around. She's been thru a lot and you being there to comfort her is exactly what she needs. She is in very good hands!
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